I couldn't decide what to name this post, so I just started listing some of my feelings. This entry is to address what's been filling my heart as of late. While looking at a friend's blog, I happened upon another blog belonging to someone I didn't know. Her name is Kele and she actually has two blogs: one to chronicle the journey of her whole family, and another to specifically chronicle the journey of her youngest daughter, Presley, who is a beautiful 6-month-old butterfly with Down Syndrome. Kele's entries are beyond beautiful...they touch my heart in a way that it hasn't been touched in a long time. The grace with which she, Presley, and their entire family handle what has God has sent their way is beyond measure. And because of her unique situation, she is part of a gorgeous circle of families whose children are battling a life threatening disease or are in some way not typical (I have no idea how to be politically correct...that seems to be the term most often used by the families themselves).
So I've found myself reading about these other families, through Kele's blog. And I can honestly say that I've prayed more in the last couple weeks than I have in a long time. I have prayed for these families to receive balms for whatever ails their hearts the most...for daughters to be extubated, for sons to see daylight for the first time, for brothers to meet their siblings, and for sisters to enjoy their mom's kisses, because they may be the last. I have also prayed uncountable prayers of gratitude. For my own healthy little girl; for my healthy nieces and nephews; for my rock of a husband; for my family. I've even said thank you for the insight I've gained from losing my mom...I would give anything to have her back, but I can not deny that it has made me stronger and more empathetic.
After reading through some of the blogs, I went back to my own and saw my post about Delilah's first fever. At first, I was ashamed...I felt so embarrassed for making such a fuss over a little infection and a couple bandages. And then I realized that my feelings were valid...I
was scared for her, and I
was heartbroken that she had to get shots and a catheter. But rather than waste time being ashamed, I realized I could take those feelings, multiply them by a factor of about a million, and perhaps start to have the very tiniest idea what an indescribable
mountain these other mothers and fathers are shouldering.
I wish I could meet each of these families and do something to make their lives easier. I do not feel sorry for them b/c who am I to dole out pity where it may not even be wanted? But I do
FEEL for them...I feel joy, sorrow, love...I feel faith, hope...I feel like this is a better world b/c of these families.
I am not posting links to any of these families b/c I haven't asked permission. But I invite you to pray for any family whose children are suffering...in particular, please pray for Kele and Presley. Presley has been in the hospital since she was born over six months ago...pray for her to go home soon. I try to imagine Delilah having never been home, and still not coming home for the next two months, and my heart stops. It just stops and I can not breathe.
Thank you, Kele, for opening my eyes and enriching my heart. Despite the hardships Presley has gone through and will continue to go through, she will grow up knowing that she is blessed to have you for a mother.
And thank you, God, for allowing me entrance into this other world and way of life. I do not know yet what I will do with these lessons I'm learning, but I promise they will not be in vain.